Testing Fate Tay-Sachs Disease and the Right to Be Responsible |
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Author:
| Reuter, Shelley Z. |
ISBN: | 978-0-8166-9996-4 |
Publication Date: | Aug 2016 |
Publisher: | University of Minnesota Press
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Book Format: | Paperback |
List Price: | USD $27.00 |
Book Description:
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Drawing on a rangeof historical and contemporary examples--from doctors' early medical reports toYouTube videos--Shelley Z. Reuter shows that true agency in geneticdecision-making can be exercised only from a place of cultural inclusion.Choice in this context is in fact a kind of unfreedom--a moral duty to act thatis not really agency at all.
Drawing on a rangeof historical and contemporary examples--from doctors' early medical reports toYouTube videos--Shelley Z. Reuter shows that true agency in geneticdecision-making can be exercised only from a place of cultural inclusion.Choice in this context is in fact a kind of unfreedom--a moral duty to act thatis not really agency at all.