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Prader-Willi Syndrome

How Parents and Professionals Struggled and Coped and Made Genetic History

Prader-Willi Syndrome( )
Author: Hernandez-Storr, John
ISBN:978-0-9971783-0-2
Publication Date:Mar 2016
Publisher:John Hernandez-Storr
Book Format:Paperback
List Price:USD $15.00
Book Description:

On March 28, 1971, Fausta Deterling gave birth to a boy. Curtis was floppy and had little appetite. When he was five months old, a doctor told his parents that Curtis had something called Prader-Willi syndrome. He told them Curtis would develop a huge appetite as a toddler, would become quite obese, would not be 100 percent mentally, and would not live past his twenties. There was no cure or treatment, the doctor said. Fausta and her husband, Gene, did not accept this. They banded with...
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